Activities

Date Event Link
14/05/2024 Europe Biobank Week workshop: Citizen & patient involvement in biobanking.  https://www.europebiobankweek.eu/programme/ebw24-workshops/ 
24/4/2024 The European Health Data Space voted in the European Parliament and officially adopted.  https://www.europarl.europa.eu/news/en/press-room/20240419IPR20573/eu-health-data-space-more-efficient-treatments-and-life-saving-research 
15/03/2023  Political agreement reached between the European Parliament and the Council of the EU on the European Health Data Space (EHDS) https://ec.europa.eu/commission/presscorner/detail/en/ip_24_1346 
14-15/09/2023 The Code of Conduct experts meet in Paris   
04/05/2023 Paper publication: Privacy risks of whole-slide image sharing in digital pathology. https://www.nature.com/articles/s41467-023-37991-y
03/05/2022 Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on the European Health Data Space – EHDS https://eur-lex.europa.eu/resource.html?uri=cellar:dbfd8974-cb79-11ec-b6f4-01aa75ed71a1.0001.02/DOC_1&format=PDF
24/02/2022 Experts present the Codes of Conduct of their countries.  
23/02/2022
Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on harmonised rules on fair access to and use of data (Data Act)
https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:52022PC0068
8/2/2022 6th European Conference on Clinical Research “Clinical Trials in a New Era” https://migration.code-of-conduct-for-health-research.eu/events/6th-european-conference-on-clinical-research
9/12/2021 2021 GDPR SUMMIT 2021 by MyData-TRUST on “Healthcare Research and its Codes of Conducts: Where do we stand?” https://migration.code-of-conduct-for-health-research.eu/events/gdpr-summit-2021
09/11/2021 Europe Biobank Week: Session on Regulatory Implications https://europebiobankweek.eu (slides forthcoming)
17/03/2021 SSHoC Workshop: Code of Conduct https://zenodo.org/record/4655623#.YYEkYC8w1QI
16/12/2020 Ein Code of Conduct für den Europäischen Gesundheitsdatenraum https://youtu.be/RDe-dQni7TY
01/10/2020 CINECA Project: Status Update Code of Conduct: Teaming up & Talking about it https://www.youtube.com/watch?v=1HcaQMtppVs
19/06/2019 CORBEL Webinar 2019: Towards a GDPR Code of Conduct for Health Research: where are we today? https://www.youtube.com/watch?v=xczRb_JCJhk
23/04-24/04/2019 Reykjavik (Iceland), IHCC International Cohorts Summit 2019 – Day 1: About European RIs & Implementing the GDPR – Towards a Code of Conduct for Health Research https://www.youtube.com/watch?v=9F1s-HVdivA&t=32516s
30/01-01/02/2019 Computer privacy and data protection Conference CPDP 2019: The Impact of the GDPR on Health Research Practices https://www.youtube.com/watch?v=-qrMjaY0tvo
04/10/2018 The Global Alliance for Genomics and Health 2018 – Privacy & Security: The GDPR Code of Conduct for Health Research Initiative https://www.youtube.com/watch?v=dmvrYKh0N5U
05/06/2018 CORBEL Webinar 2018: Status Update on the Code of Conduct for Health Research https://www.youtube.com/watch?v=nQfUimTYDJY&feature=emb_imp_woyt
25/04/2018 The GDPR and Health Research Webinar Recording https://www.youtube.com/watch?v=kRcyzWT3LBk
25/04/2018 The GDPR and Scientific Research: Principles https://www.youtube.com/watch?v=cEkucJ3d76w
24/01-26/01/2018 Computer privacy and data protection Conference CPDP 2018: Code of Conduct for Medical Research – A Resource in Turbulent Times? https://www.youtube.com/watch?v=kE_uf2H1uc8

https://migration.code-of-conduct-for-health-research.eu/events/the-code-of-conduct-for-health-research-its-genesis-objectives-structure-and-content
24/11/2017 Expert Workshop on Anonymization https://migration.code-of-conduct-for-health-research.eu/events/reference-group-anonymisation
06/11/2017 Seminar on the GDPR Code of Conduct for Health Research and Implications for FP9 https://migration.code-of-conduct-for-health-research.eu/events/gdpr-code-of-conduct-for-health-research-and-implications-for-fp9
14/09/2017 GBW 2017: Conference Session on the EU GDPR and a Code of Conduct in the Area of Health https://migration.code-of-conduct-for-health-research.eu/events/the-eu-gdpr-and-a-code-of-conduct-in-the-area-of-health
13/09/2017 Keynote Plenary on Future Biobanks at the Global Biobank Week https://migration.code-of-conduct-for-health-research.eu/events/future-biobanks
07/06/2017 The Code of Conduct Forum Meeting  
07/06/2017 Preparatory Meeting on the Code of Conduct https://migration.code-of-conduct-for-health-research.eu/events/prepatory-meeting-code-of-conduct
02/05/2017 Presentation on the Initiative for a Code of Conduct for Health Research https://migration.code-of-conduct-for-health-research.eu/events/initiative-for-a-code-of-conduct-for-health-research
19/04/2017 Webinar on the Code of Conduct Initiative https://migration.code-of-conduct-for-health-research.eu/events/webinar-on-the-code-of-conduct-initiative
01/02/2017 BBMRI-ERIC Working Meeting on the Road to a Health and Life Sciences GDPR Code of Conduct https://migration.code-of-conduct-for-health-research.eu/events/bbmri-eric-working-meeting-the-road-to-a-health-and-life-sciences-gdpr-code-of-conduct